3.5 hours
i managed 3.5 hours of sleep last night which is no small feat considering calvin wasn't feeling much like sleeping. between him gaining a kilogram of new mass and not moving for the past week and a half, he is a bit floppy...almost like having a 15 pound newborn. his sleep cycles appear to be out of whack so it seems we are essentially starting over again. and, i really struggle with comforting him with all the wires/tubes attached.
he is eating well, his suck/swallow coordination is good and he has good drive to eat. the oxygen has been turned off altogether and his saturation remains high so hopefully the nasal cannula and feeding tube will be gone sometime this morning yet. it is going to take about 2 or 3 weeks to wean him off the pain and sedation medicines.
anyway, one step closer to home...actually many steps closer. but, we have a long way to go to get our little calvin back.
he is eating well, his suck/swallow coordination is good and he has good drive to eat. the oxygen has been turned off altogether and his saturation remains high so hopefully the nasal cannula and feeding tube will be gone sometime this morning yet. it is going to take about 2 or 3 weeks to wean him off the pain and sedation medicines.
anyway, one step closer to home...actually many steps closer. but, we have a long way to go to get our little calvin back.
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Heavy, good vibes being sent your way with a streaming doses of the big L.
If we can assist, do not hesitate.
Sam, Sandy, Elle and Max.